by Michael Wells
Well we’re at Children’s Hospital of Philadelphia (CHOP) and Brady is once again hooked up to an IV pump and once again starting to receive all sorts of medications. Tonight it’s Dilantin, followed by Busulfan every 6 hours for the next 4 days. This is also combined with various prophylactic antibiotics including; Chlorhexidine gluconate oral rinse to prevent infections. It’s going to be a fun couple of months.
On the positive side of things; we got a room at the Ronald McDonald House at the daily rate of $15.00 and from what Sherrie has told me it’s not that awful. She’s spending the night there with her Mom and hopefully getting some rest.
So far things here are rather typical for a hospital; old crib, (which was replaced) and light switches not working but at least the place is clean. I have already met Megan the Charge Nurse after voicing my opinion about how can CHOP be rated the number 1 pediatric hospital in the United States and no one knows how to turn the brightest bank of fluorescent lights off. As I said, so far it’s just a typical hospital.
Engineering just arrived to fix the lights and what a surprise; the fix is going to be to remove the light bulbs. I told you this place so far is not wowing me…
It’s late and I had a long stressful day and I have the “watch” tonight so I am going to try to catch a few hours of sleep. Until next time; please continue your prayers, hugs and think of Brady as he embarks upon this phase of his cure.
“8 Years Later—Still No Cure for Pediatric Cancer” is a series of posts revisiting the journal kept by Sherrie and Michael Wells during the cancer diagnosis and treatment of their son, Brady Michael. Hopefully these entires will provide an understanding of the journey families face when dealing with these horrific diseases and of the important work the Hugs for Brady Foundation does.