by Michael Wells
Thursday was an interesting day. We went to pay our respect to Brady’s friend; Jasanti, we made a decision and the “man cave” made an unexpected appearance.
Jasanti’s service was very nice and I must say I don’t think I have ever seen so many flowers, it was quite emotional. We didn’t stay long as Sherrie was no feeling well and I actually managed to convince her to go home for the rest of the day.
Sherrie is exhausted and I am a bit worried about her health. She went home around 1:00 pm and slept most of the afternoon. I hope she feels better as this is, let’s say; a rather difficult situation to go solo. Sherrie’s Mom also isn’t feeling well and she too stay home.
So, the man-cave took charge and this time it was in high gear as Grandpa Gary stayed most of the afternoon and evening. And, for those of you who know Gary, he actually helped. Thanks Papa, Brady Bear really loves you!
Decision time! We are going to stay in the hospital for at least the next 5-6 days. Our logic is, we are not ready to throw the towel in and until we are convinced there absolutely nothing left we are staying put. If we went home, we would be on the rather strict rules of a transplant patient and therefore we here through the 5th of July. No big deal, after-all we have spent Halloween, Christmas, and Easter in the hospital.
Brady had another “good” day. His CBC is great with a white count of 0.1, his temperature is in the 98° range and his blood pressure is also in normal ranges. He is now getting a reduced amount of steroids orally and still no visible signs of GVHD. He’s doing well and we just have to continue this trend. We will be at CHOP for the Donor Lymphocyte Transfusion on July 12th. There is NO other option!
Yesterday, we walked and walked and walked and walked some more. Brady just loves his wagon rides. We had 3 picnics in his crib. He dined on yogurt, fish crackers, cookies, and diet coke. Life is good in the man-cave. Until next time, please continue with all your prayers, hugs and good thoughts; for Jasanti, Mark, Christian and every other kid with cancer this disease MUST be stopped!
“8 Years Later—Still No Cure for Pediatric Cancer” is a series of posts revisiting the journal kept by Sherrie and Michael Wells during the cancer diagnosis and treatment of their son, Brady Michael. Hopefully these entires will provide an understanding of the journey families face when dealing with these horrific diseases and of the important work the Hugs for Brady Foundation does.