07/22/2010
by Michael Wells Wednesday, was another copy of Tuesday. Brady slept most of the day. He is awoke around 7:30pm and wanted to go for a walk. It was truly delightful to put him in his carriage with a half dozen stuffed animals and an assortment of various toy tractors. During our walk, we had the chance to stop and chat with our neighbor Tony it was really nice to visit a few moments with him, his mom and his daughter. Just really nice people! Brady is still waking up every hour or so but tonight he doesn’t appear to be in as much pain as last night. I have not had to push the bolus button once, until 5 minutes ago. However, he is having serious problems holding down anything. Sherrie and I are once again the unofficial King & Queen of puke. Brady is just amazing how he still tries to vomit in his ‘bucket’ and not all over everything. It’s getting more and more difficult to write journal entries but I will try my best to keep everyone informed on Brady’s status. It’s just so painful for all of us. As odd as this might sound, Brady is spending most of his time on the floor in our family room. Sherrie has placed a foam mattress topper under a quilt and Brady has all of his stuffed animals, toys and several pillows to keep him comfortable. When he is awake, he watches his Baby Einstein or Elmo videos and he appears to be quite content. I just changed his diaper and he is in a lot of pain. Just trying to move his legs, makes him cry out. Christ! I hate this satanic crap called leukemia. Before I continue to ramble on “venting my spline,” let me get caught up on some very important “Thank You’s.” We would like to thank a couple of companies who are helping Brittany make the Super 50/50 Raffle a huge success. The good people of Pro-Tuff Decals [link removed] thank you for expediting the printing and shipping (free of expedited costs) of the decals the boys will wear on the helmets next weekend during the lacrosse tournament honoring Brady. They look GREAT! Elizabeth, Harry, Tracey, and the rest of the team at Nashville Wraps [link removed] for expediting the printing and shipping (again, free of expedited costs) of the Hugs for Brady Foundation ribbon that will be passed out at the tournament next week. Thank you for your tremendous support! Elizabeth – one of the Nashville Wraps employees – thank you for your prayers, they are truly appreciated. Truly incredible people (employees) at both of these exceptional businesses! We also want to thank Brittany our amazing new friend for making all this happen. Brittany you are just astonishing! So far, the raffle prize is over $2,000.00 and growing daily. Brittany could use some help this weekend selling tickets. If you’re in NJ and have some time, you can contact her at: [link removed] A couple of other wonderful people we need to mention and express our thanks to: Anne Luck and our loving neighbor Alice Burelli for their generous donations to Hugs for Brady. One more thank you to a very special nurse, Robin; she is a member of the team of nurses who have been visiting Brady on a daily basis. Yesterday, she made a special trip to our house (at 8:00pm) to bring an IV bag to ensure Brady’s supply was adequate and he wouldn’t run out. Robin along with Pam and Nurse Practitioner Donna are very special people and from the bottom of our hearts we thank you. Finally, Brady is in the final phase of his journey with us. Please help him with your continued prayers, caring thoughts and hugs; he needs all you can give him.“8 Years Later—Still No Cure for Pediatric Cancer” is a series of posts revisiting the journal kept by Sherrie and Michael Wells during the cancer diagnosis and treatment of their son, Brady Michael. Hopefully these entires will provide an understanding of the journey families face when dealing with these horrific diseases and of the important work the Hugs for Brady Foundation does.