11/11/2009
by Michael Wells I just spoke with Sherrie (who spent yet another night at the hospital) and she told me Brady once again is spiking temperatures. He was just given more Tylenol and hopefully this will bring his 102.4˚ temperature back in line. Brady also has red dots on his body which is now creating a ruckus about the possibility of him having chickenpox. I love the medical profession; at times I think I am dealing with better educated auto mechanics – no offense to auto mechanics! However, chickenpox would explain much of what’s going on with Brady – high temperatures, vomiting, red dots, etc. We’ll have to wait and see… Thanks again for everyone’s kind words, prayers, and hugs – they mean more than you can possibly imagine! Until next time; please keep Brady in your thoughts, prayers, and hugs…Wednesday night and I have the watch! My Brady is watching his favorite video; Baby Einstein and for the millionth time just loving it. He had another eventful day: echocardiogram, 3 different groups of doctors examining him from infectious disease to hematology/oncology and PICU – all this attention and still no definitive conclusions on whether or not Brady has chicken pox. And before he retires for the evening he is scheduled to have his PICC line dressing replaced and an abdominal ultrasound. And Yes, I have no reason why the ultra-sound. Most likely they want to rule out any problems with the kidneys. Finally, Brady had to move to another room – a negative pressure room which will prevent chicken pox from spreading to the rest of the hospital. While the room is much bigger it is all much colder; 54° – to keep Brady’s temperature down and when I walked into the room I thought the nurses were excited to see me. This has once again been an eventful day. All of this going on while Brady once again spiked a fever of 102.7°, can’t wait to see what the night time brings… Got to say good-night to my lady; be back in a bit… Well, I’ve been here alone for less than 10 minutes and I’m already in hot water with Brady’s nurse. It seems she wants his crib to have all the panels in proper position “for his safety.” Now I can understand this but no one in the past 5+ weeks has once required Brady to be in a bubble. So, it’s going to be the beginning of a lovely evening. Nurse Ratchet of New Delia and me are going to clash, I can see it coming… Well I want to play with Brady; he’s throwing one of his stuffed animals to me and now he’s trying to do tumbles with all tubes and wires and every one of the machines are now beeping – it’s quite funny! Until next time; Please keep Brady in your thoughts, prayers and hugs…
“8 Years Later—Still No Cure for Pediatric Cancer” is a series of posts revisiting the journal kept by Sherrie and Michael Wells during the cancer diagnosis and treatment of their son, Brady Michael. Hopefully these entires will provide an understanding of the journey families face when dealing with these horrific diseases and of the important work the Hugs for Brady Foundation does.