01/28/2010
by Michael Wells Good morning or late night or whatever… I’m up and I have been for the past 3 hours or so. We had technical problems with Brady IV pumps; they kept occluding. And every time the IV lines are blocks the pumps start a ringing sound that at 3:00am resembles the horn on a submarine preparing to submerge: DIVE, DIVE, DIVE!!! Now if this happens once or twice it’s no big deal you just hit the call bottom and in a minute or two your nurse is unraveling the kink in the IV lines, the horn stop blaring and you’re once again fast asleep. But tonight (no exaggeration) Brady’s submarine horn was screaming on at least 8 different occasions. No sooner would I tell myself the thing was fixed and I could return to my sleep then it would start blasting way again. Nurse Karen cleaned all the fittings, checked all the stops, even changed pumps but nothing seemed to work. Finally with the help of one of her coworkers (Nurse Josephine) the problem was finally resolved. I have no idea what was causing the problem and I’m not sure they do but it seems to be fixed. Now here’s the amusing part: Brady slept through all of this! I swear once he’s asleep a nuclear bomb could go off and the noise would not wake him. However, the really sadistic humor is the fact that I am wide awake and I do believe it’s for the rest of the day. Three hours of sleep should be more than enough to function. Nurse Karen just came in to draw blood samples for Brady’s CBC work and or course this woke Brady. I had to comfort him in my arms or should I say he comforted me. I just love mornings with my beautiful loving baby in my arms, it just melts my heart. He’s now lying in his crib with a morning bottle and hopefully will fall a sleep or Sherrie’s day will be rather interesting with a cranky baby. I think he’s knotted-off- yeah! So, I’m going to jump into the shower and get “my day” started. Until next time; prayers, hugs and good thoughts… PS Bone Marrow Biopsy some time between February 5th and 11th.“8 Years Later—Still No Cure for Pediatric Cancer” is a series of posts revisiting the journal kept by Sherrie and Michael Wells during the cancer diagnosis and treatment of their son, Brady Michael. Hopefully these entires will provide an understanding of the journey families face when dealing with these horrific diseases and of the important work the Hugs for Brady Foundation does.